Support group set up by parents to advise and signpost on all aspects of living with or caring for someone with Fanconi Anaemia. Do run annual events however but due to low numbers of people diagnosed with condition (around 100) there are no local support
We are a registered national charitable trust set up by parents of Fanconi Anaemia (FA) affected children and clinicians with an interest in FA.
Fanconi Anaemia (FA) is a rare, life-limiting genetic disorder causing bone marrow failure in children and a predisposition to gynaecological, head and neck cancers, together with other complications both in childhood and in later life.
Get In Touch With Us!
+44 (0) 300 330 1410
PO Box 905, Southsea,
Hants, PO1 9JG